I’m sharing this as a mum to other families, because what my family has just been through has been deeply distressing, and I can’t stay quiet knowing another family in a vulnerable position could go through the same thing. We are an NDIS family already juggling so much — burnout, therapies, appointments, behaviours, sleepless nights, all of it. We don’t have room for extra stress. We don’t have the capacity to fight battles we didn’t ask for. We rely on providers to support us, not make things harder. But my experience here left me feeling unheard, dismissed, overwhelmed, and at times completely broken down. The communication issues went on for months. Whenever I asked questions or tried to understand what was happening with my child’s supports, I was met with responses that made me feel like I was the problem for even asking. It felt like the more I tried to advocate for my child, the worse I was treated. As mums, we know how hard it is to speak up when something feels off — especially when we’re already exhausted. But the way my concerns were handled caused incredible stress for me and my family, to the point that I had to step away completely. I’ve also lodged a formal complaint with the NDIS Commission so this can be reviewed properly. I’m sharing this because I don’t want another family to end up blindsided or carrying this kind of emotional load on top of everything else. Families like ours deserve empathy, transparency, and support — not confusion, distress, or fear of speaking up. Please just be cautious and trust your gut. Our kids deserve the best, and so do we.