The experience my family and I had in attempting to have my Dad admitted to Regis Port Coogee 'memory unit' was nothing short of diabolical. 1.) Admissions Process The admissions process is, at best, opaque and, at worst, deliberately misleading. My mother was given the clear impression that Dad would be able to remain permanently following a two-week respite period. With the encouragement of staff, she took steps such as moving in furniture - actions that would not be undertaken for a respite stay. At no stage was it made clear that his continued residency was contingent upon clinical assessment and approval. 72hrs prior to the end of the respite agreement, my mum was phoned and abruptly told that Dad would not be able to stay. For someone wracked with the guilt of having put her husband of several decades into care, being told this abruptly over the phone was traumatic and extremely stressful. There were concerns with his behavior, we were told, and the message amounted to ‘we can’t handle him, you’ll need to take him back’. In a follow up meeting which we had to request, it was noted that Dad exhibited a number of behaviours considered problematic: entering other residents’ rooms, undressing, toileting issues, and generally disruptive behaviour. These behaviours are widely recognised as typical of Alzheimer’s and dementia. One would reasonably expect that a dementia-specific memory support unit would be equipped to manage them (if not there, then where?). Far from normalising these behaviors as symptomatic of the disease that has crippled my father for close to a decade, we were made to feel like he was a troublemaker, who "didn't fit with the cohort". In the follow-up meeting it was asserted that the initial respite arrangement is always treated as a trial, despite this never having been mentioned prior. In fact, the admissions team had implied the very opposite, in an effort to get my Mum to sign on the dotted line. The reality, I suspect, is that once my father’s Dementia related behavior was more fully known, Regis deemed caring for him would not be profitable enough. 2.) Standards of Care The Dementia wing staff were unfortunately unable to care for my dad effectively. My Mum was often phone called (please note this is supposedly her “Repite" period) to come and tend to Dad’s ADLs, as the staff were unable to change him or get him in and out of bed. On one occasion he locked himself outside on a balcony and was only discovered by my Mum (the staff rarely seemed to know where he was when we dropped in). Meanwhile, carer staff were witnessed on their mobile phones. The worst incident involved him again being discovered by my Mum having defecated on the floor and with both hot water taps running. I cannot say how long it would have taken the staff to discover him in this condition, as it was only by chance that my Mum found him. The story has a happier ending as Dad is now being cared for in a nearby facility, where his behaviours are normalised as being part of his Dementia, and the immensely patient staff are making gradual process with Dad, with him being given an appropriate amount of time to settle. It is unfortunate that our experience at Regis Port Coogee no doubt caused an irreversible backslide in Dad, and for that reason I urge extreme caution to anyone considering this facility for their loved one with Dementia. In particular, please ask the question 'will my loved one's permanent admission be subject to clinical approval', as this is the key point that was never made clear to us.
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